We are Kat, Lisa and Sarah, three people with experience of vaginismus striving to help sufferers and their partners to feel more connected.
When Kat and Lisa met in 2016 for the first time, they were able to share vaginismus stories with someone who really understood and had been there too. They talked of how there must be many people with this condition who suffer in silence and don’t often get to meet others who have it. By the end of the evening, they had pledged to make a place where people with this condition could share, celebrate, commiserate, vent, enquire and feel less isolated by all things vaginismus. And so The Vaginismus Network was born.
The next year, while arranging an event, they were introduced to Sarah Berry, a therapist who had overcome vaginismus and specialised in the condition. She was on a crusade to help spread more understanding about the condition and was excited to come on board and complete the trio.
Although our stories are different, the impact of living with vaginismus has been the same. For years we each lived our lives feeling isolated, ashamed and frustrated. We have carried our secret from those close to us, which in itself has impacted upon our relationships and self-esteem. That's the thing about vaginismus; it's way more than just a physical condition. The wider impact has been profound. And, to be quite frank, we are tired of it!
It is our hope that The Vaginismus Network will educate, connect, support and empower women who are living with this condition.
AIMS AND OBJECTIVES
THROUGH THE VAGINISMUS NETWORK WE AIM TO...
Raise awareness of vaginismus
Provide support to women living with the condition
Enable women to make connections and friends with other vaginismus sufferers
Provide unbiased, truthful information on vaginismus symptoms and treatment
WE WILL DO THIS BY...
Providing unbiased, free online information- written by women with vaginismus, for women with vaginismus
Setting up support groups, meet ups, workshops and social events
Speaking to medical professionals, sexual health professionals and at events to bring vaginismus into the mainstream and remove the stigma and shame attached to the condition